NORD’s Rare Caregiver Respite program was an absolute lifeline for our family this past year. With the respite program, I was able to select a family friend who I trusted, who was already adequately trained to handle my daughter’s needs, and I could have her provide respite whenever I needed it. The reimbursement process was easy, and payment was received promptly.

—Anna W., Parent

RareCare® Patient Assistance Programs

NORD Supports Rare Disease Patients Impacted by California Wildfires

If you or a loved one have a rare disorder and have been impacted by the LA fires, you may be eligible for relief through NORD’s Natural Disaster & Hurricane Emergency Relief Program. This relief may be used for:

Short-term emergency lodging
Limited home repairs
Auto repair or short-term car rental
Other needs considered on a case-by-case basis

Click here to apply for assistance or email [email protected].

For more information on NORD’s Natural Disaster & Hurricane Emergency Relief Patient Assistance Program, click here.

We provide patient assistance programs to help individuals living with rare diseases:

Obtain medication
Receive financial help with insurance premiums and co-pays
Get diagnostic testing assistance
Receive travel assistance for clinical trials or consultation with disease specialists
Provide caregiver respite
Offer support during emergencies
Gain knowledge about rare diseases
Connect with other patient assistance programs

Help with Financial Assistance

Our RareCare^® program helps patients obtain life-saving or life-sustaining medication they could not otherwise afford. The program also provides financial assistance with insurance premiums and co-pays, diagnostic testing assistance, and travel assistance for clinical trials or consultation with disease specialists.

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Help with Caregiver Aid

Caring for a loved one demands significant amounts of time, attention, patience and dedication. Our Respite Program provides financial assistance to enable caregivers a break to attend a conference, event or simply have an afternoon or evening away from caregiving. We grant up to $250 for those who qualify.

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Help with Educational Support

The Rare Disease Educational Support Program reimburses registration costs for rare disease-specific educational offerings such as workshops, nutrition classes, and conferences, as well as limited financial assistance for travel and lodging costs. For more information and to apply, please contact [email protected] or 860.556.2208.

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